Hydradenitis Suppurativia

Well I went to my doctors appointment about 3 days ago now and I've now been diagnosed with Hidradenitis Suppurativa its a hereditary, recurrent, & painful disease in which there is inflammation in the apocrine sweat glands. It causes a blockage in the hair follicles. As the secretions cannot escape, the hair follicles may swell up & burst, or become infected. 

Hidradenitis Suppurativa has also been linked to the bowel condition chron's disease. The treatment I have to take is called Doxycycline is a tetracycline antibiotic that fights bacteria in the body. The side effects are rediculously long. 

But on a good note I got to visit with my sweet little man Corbin. Who is Heathers son. She would be so proud of how big he's gotten. He makes me feel so much better like Heather did. I wish I had more time with her, to do things with her. 

Worth

It's days like today I'm really glad that I have Barry with me.

I don't know how I would deal if I didn't have his love and support.

I'm getting tired of all the backstabbing people in my life who spread

lies and talk behind my back. I'm tired of those people being as close

as family or being family members as well. I don't know who to trust

anymore. It's sad when I have no one to talk to but my own boyfriend.

I have a few friends I can think of that I can trust but I don't want to 

burden them with my problems. Who do you trust now a days.

I like to keep to my self now since Heather's passed away. Even 

my old close friends have changed and are unreliable. I knew when I

had days like today I could call Heather and tell her everything with no

judgement, no pointing, no concern she would tell another. Life was good.

I wish I had that again but people have become so full of them selves, no

concern for others, doing for them selves and not thinking of the consequences.

Some just going down a path that you can't even say anything thing because

it will do no good anyways. They just push you away and continue down

that spiral to nothing good and i'm there at the end waiting, beaten, torn down,

bleeding and yet my arms are open to catch you...you let me fall. 

But Barry is there. That's all that matters. That all I can hope for.

And it's worth it.

JDRF Walk For Diabetes

We did the JDRF walk or diabetes yesterday which went better than I though. It started at 10 and we were done and ready to go by 12:20. I met a few of Barry's co-workers. I had fun pushing Brandy and Daves daughter Abby in her stroller. I would do it again. 

Mallymkun

Warning! Graphic content in this post!

So I got a new addition to my vastly growing sweet little personal collection. 

I've decided to name him Mallymkun. He's a sweet little white mouse around 3 inches not including the tail. He was beautifully preserved by my new friend Jocelyn, who told me he was one of her first wet specimens. He's such a beautiful shade of white & I will love him forever. 

Jocelyn has also been given the task to preserve my very first wet specimen whom I call Sir Lupin The First. If you haven't guessed he's a little bunny (Lupin). His jar was tainted and I'm excited to get him back all fixed up! 

Funny I have a rabbit and a mouse. A rather Alice in wonderland goings on here. What a fitting name for my mouse to have as Mallymkun (the door mouse in Lewis Carols Alice in wonderland). Twinkle Twinkle Little Bat! 

Hillview Haven Estate Bed & Breakfast

 

      We got away finally. Away from everyone and went on our bed and breakfast estate getaway. It was absolutely wonderful and very much needed. So our stay was at a beautiful place about 3 hours away called Hillview Haven Estates. It's on 24 acres of land with horses and a gorgeous view of the lakes and hillsides. They had many rooms that were styled to different countries like England, Africa, France, And a Victorian style room as well for a family to stay in, we booked the cutest one though it was Japan. We had a gorgeous large tub big enough for two right beside our bed that we set up Netflix and soaked for two hours. It was so much fun. 

The dinner the host prepared was a three course meal that I would love to go back for more. We started with a salad that was avocado, apple, and cucumber diced on top of a single leaf of lettuce with his homemade dressing. (to die for) also my first time trying avocado. (not bad at all). Our main was stuffed chicken breast roasted with sliced almonds and mango on top of another home made gourmet sauce with roasted potatoes, asperigus and a stuffed pepper. (also my first time trying asperigus not a big fan of it but not bad also). For desert we had the lightest chocolate cake I've ever had in my life. It was served in a martini glass the order went chocolate cake, layer of ice cream on top, chocolate topping with whipped cream then more chocolate shavings, a cookie wafer and a strawberry on top. (heaven in a martini glass should be the name). We later found out this man used to be a gourmet cook who worked for five star restaurants all over the place.

Barry took me shopping around the area and we went to wonderful attractions in really remote places. We got to see scrap metal made into really cool figures like Bumble Bee and Optimus Prime!

      

      

                                           Yeah we're nerds who get excited about this stuff.

        I found a vintage portrait someone painted and had a good laugh cause it reminded me of Barry looks like his pooping face which is also his might be concentrating probably thinking about bacon face lol. Either way I miss his Moustche! 

      

       This was my new friend were very close as you can tell lol I had a really nice laugh after I thought of all the comments I could just imagine Heather saying about us being a pink threesome lol. 

    Over all it was a really great vacation even though it as only two days away from home. It's was needed and I feel so much closer to Barry and much more in love with him. I have a second heart necklace now two sizes bigger than the last which just reminds me everyday how much larger my love grows for him but the little one to show me where it all started. 

               To end off my blog post here I leave you with this great store find....a penis pig!